I have often thought how I would write another non food/recipe related post. And it struck me that whilst Noah has Coeliac Disease, there are others that do not have the ability to write blogs and bake cakes and cook easily. So here is just a snippet of what an ordinary couple of weeks looks like in our household. Albeit the last couple of weeks have been around Christmas and New Year.
Nothing fancy, nothing out of the ordinary, just plain and simple. A family of 4 living with a child with Coelaic Disease.
The weeks leading up to the festive break had been a little hectic to say the least. As I am sure most parents were with little ones at school. Performance after performance, for the final 4 weeks of winter term. Noah being in his first Nativity at school, saw him perform at least 5 times in a week!m It’s no wonder they are a little exhausted by the time they finish. We also had to endure Noah’s annual blood test and check up. Something he does not relish and we have the conversation about ‘when will I be normal free? I don’t like the hospital….’.
So when it got to the first couple of days of the holiday, we just had ‘PJ days’. And as for lunch (it has to be lunch, not dinner as our two eat so much better mid-day) we managed meat , potatoes and 2 veg. Grilled chicken, pork chops, gluten free sausages from Asda, with plain boiled potatoes and veg – carrots, Brussels (yes both of ours love sprouts!) or sugar snaps. Just plain and simple. We have found that mixing foods up in stews etc doesn’t normally work, but if the children can see the food, they eat it all! Although it does take Noah a few minutes to ‘warm up’ to eating. I’m sure some child psychologist would have a field day with us, as we all sit around the table, whilst Noah has a hissy fit on the floor! We get there in the end and no one goes hungry.
Christmas Eve was going to be tricky. Santa had already dropped some presents off for the ease of distribution, up in the attic. But getting them down would not be as easy as it was last year! Having been stirred into a ‘Christmas Frenzy’ by school, both children were in a heightened state of excitement. What to do? So I booked a late cinema viewing with number 1 daughter to see ‘Star Wars’ (great film, throughly enjoyed it) and whist we got Noah down as usual, my wife was then able to do the ‘attic run’.
And so, as we started last year, and after the presents were put around the Tree, we covered the door in wrapping paper and waited till morning. Mind you we didn’t expect SUCH an early wake up call! 4.45am!!! We managed to stall unwrapping for a couple of hours, but gave in, in the end.
We all had something different for breakfast, as was the requests, Noah had gluten free toast with Nutella, whilst I had Eggs Benedict and the other half had a smoked salmon and cream cheese bagel! Our touch of luxury for the day. Mind you by mid-morning we could have easily had a second breakfast! So on with lunch – Roast Beef this year, by mutual consent. And because I had forgotten to buy gluten free Yorkies I had to make some. Based on previous batches, I wasn’t going to fail on a day like Christmas Day! They weren’t all that bad, and when I have perfected them I’ll share the recipe, these were a little to heavy for my liking, but they all got eaten. Again for lunch nothing extreme, just roast beef, roasties (in veg oil), sprouts, the last of the homegrown parsnips roasted, carrots and some red cabbage (for me and the other half). Noah didn’t want any pud, so he just broke into his Cadbury Selection Pack (minus the unsuitable bars).
We have found that Noah is more than happy (and most certainly is his tummy) with foods that are not just gluten free but also with foods that contain no gluten ingredients. His recent blood test was testament to this. Another low anti body reading, which we had expected to rise. His first term at school has been the first time since being diagnosed that we would have no control over his diet, we would have to leave this to the school caterers. Something we were apprehensive about, and had certainly made sure they were aware of Noah’s Dietary requirements. But all is good! Although I can hear a Twitter friend in my ear….’Fruit is not a Pudding….!! But to be fair Noah is very good when it comes to fruit and veg. Thankfully. We have ensured he understands that because he has a ‘poorly’ tummy he needs to eat healthy..long may this last…
And something else we have found with Noah, which is what happened on Boxing Day. When it comes to large numbers of people Noah tends not to eat. There is just so much else going on! Although we do tend to organise food before the hoards arrive – and then it’s normally sausages, pots and veg.
And there are times of guilt. As hard as it is visiting others, I often put myself in Noah’s shoes. How must he feel seeing others eat just anything, not having to ask? I can often understand why he won’t eat and I make a conscious decision not to eat the ‘normal free’ food. It’s tough. One day he’ll have to make more of his owns choices.
And so we ended the first week of the festivities, with more of the same to come. We headed up to see Grannie & Grandad, but here there were more Pyjama Days because there was no TV or wi-fi. We did have the occasional trip out, but as usual we found the gluten free offerings limited. One can surely eat gluten free Brownies so often?
And so now we look at returning to work and school. The days of leisure and festivities are coming to an end. Life returns with a bang soon and we face again the realities of normality. Whatever that is 😀😀